Ana’s Story: Living with Neurofibromatosis

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This was an audio slideshow done by the LA Times about a girl named Ana who is living with Neurofibromatosis.

According to Mayo Clinic, Neurofibromatosis is “a genetic disorder that disturbs cell growth in your nervous system, causing tumors to form on nerve tissue.” It could be as small and benign as a birthmark, or it could be like Ana’s: large, lumpy tumors on your face. As the years went on, her conditioned worsened.

It has three different parts of the slideshow: one where Ana talks about how she lives and copes with Neurofibromatosis, one where her father talks about her childhood and raising her with this disease, and one where her surgeon talks about her operations and how his goal is to help her accept herself as normal. I really like how they had those three different sections with three different voices. It gave different perspectives and added value to the story.

I think the photos were great. There were a lot of up close shots of Ana where you see how bad her face is. They also included pictures of her face after each surgery so you could see her progress. I also loved how they included pictures of her when she was born and as she grew up in her childhood so you could see how her face changed. There was also nat sound of the noises of the machines in the hospital which was good.


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